Synthetic nightmare is over

Upon waking this morning and hearing the birds, right outside my window, I felt peaceful. Breathing in the cleansed, moist mountain air from the great rains, once more I buoyed (is that even a word?). There are no discernible aftershocks from the emotional lava. I did come to the conclusion, that even though I have genuine feelings about this whole cancer trip, yesterday was mostly due to the side effects of the painkiller. I would rather feel the pain than go through another crappy day like yesterday, if I can avoid it. (Makes me wonder how many people take meds that alter their emotions and thinking? Then take more to deal with that.)

I will learn a little more after my Doc’s appointment today. Meanwhile, I will order some items for our hike. I also noticed, how I missed going up to the early morning sun-lit black walls of the canyon. Maybe this weekend.

Train wreck

Well. I didn’t see that one coming. I am totally wiped out and could wipe the puddle on the floor, that is me.

After months, weeks and days of utter cheerfulness and Pollyanna method, the mighty self crumbled and I’m weeping over any damn little thing. Could be the pain meds. Could be that I feel that having cancer once was enough. That I paid my ‘dues’. I feel like I carried this big sack up the mountain, slid back down, picked it back up and go again.. and again. I feel overwhelmed and sad. I wish I could find a Naturopathic Doc who would lead me through this jungle of choices. Which one to do? Which one to avoid?

I don’t want to repeat, even one more time, what my test result was and how this brings the reality closer and closer. Then again, tomorrow is another day and I’ll carry on, chin up, etc.— Thanks Cameron for catching me and giving me a soft place to fall.

The Gerson Therapy: Cancer Cure, or Health Risk?

It sounds reasonable enough.  According to the Gerson Institute the Gerson diet:

is naturally high in vitamins, minerals, enzymes, micro-nutrients, extremely low in sodium and fats, and rich in fluids.

The following is a typical daily diet for a Gerson patient on the full therapy regimen:

  • Thirteen glasses of fresh, raw carrot/apple and green-leaf juices prepared hourly from fresh, organic fruits and vegetables.
  • Three full vegetarian meals, freshly prepared from organically grown fruits, vegetables and whole grains. A typical meal will include salad, cooked vegetables, baked potatoes, vegetable soup and juice.
  • Fresh fruit and fresh fruit dessert available at all hours for snacking, in addition to the regular diet.

Then things get confusing.  Reading about the Gerson Therapy is like my first weeks as a judicial clerk for a federal judge, where I could still be swayed by whichever argument I was reading.  Witness the Gerson Institute’s common-sensical explanation:

Throughout our lives our bodies are being filled with a variety of disease and cancer causing pollutants. These toxins reach us through the air we breathe, the food we eat, the medicines we take and the water we drink. As more of these poisons are used every day and cancer rates continue to climb, being able to turn to a proven, natural, detoxifying treatment like the Gerson Therapy is not only reassuring, but necessary.

The Gerson Therapy is a powerful, natural treatment that boosts your body’s own immune system to heal cancer, arthritis, heart disease, allergies, and many other degenerative diseases. One aspect of the Gerson Therapy that sets it apart from most other treatment methods is its all-encompassing nature. . . . [T]hirteen fresh, organic juices are consumed every day, providing your body with a superdose of enzymes, minerals and nutrients . . . break down diseased tissue in the body, while enemas aid in eliminating the lifelong buildup of toxins from the liver.

With its whole-body approach to healing, the Gerson Therapy naturally reactivates your body’s magnificent ability to heal itself – with no damaging side-effects. Over 200 articles in respected medical literature, and thousands of people cured of their “incurable” diseases document the Gerson Therapy’s effectiveness. The Gerson Therapy is one of the few treatments to have a 60 year history of success.

The Institute goes on to add that “it is rare to find cancer, arthritis, or other degenerative diseases in cultures considered ‘primitive’ by Western civilization. Is it because of diet? The fact that degenerative diseases appear in these cultures only when modern packaged foods and additives are introduced would certainly support that idea.” Gerson’s solution:  “Stay close to nature and its eternal laws will protect you.”

The Gerson Therapy seeks to regenerate the body to health, supporting each important metabolic requirement by flooding the body with nutrients from almost 20 pounds of organically grown fruits and vegetables daily. Most is used to make fresh raw juice, one glass every hour, 13 times per day. Raw and cooked solid foods are generously consumed. Oxygenation is usually more than doubled, as oxygen deficiency in the blood contributes to many degenerative diseases. The metabolism is also stimulated through the addition of thyroid, potassium and other supplements, and by avoiding heavy animal fats, excess protein, sodium and other toxins.

Degenerative diseases render the body increasingly unable to excrete waste materials adequately, commonly resulting in liver and kidney failure. To prevent this, the Gerson Therapy uses intensive detoxification to eliminate wastes, regenerate the liver, reactivate the immune system and restore the body’s essential defenses – enzyme, mineral and hormone systems. With generous, high-quality nutrition, increased oxygen availability, detoxification, and improved metabolism, the cells – and the body – can regenerate, become healthy and prevent future illness.

According to critics, however, the evidence for the efficacy of the Gerson Therapy is lacking.  While the Institute cites “peer-reviewed” studies, critics claims Gerson’s people (Gerson being deceased half a century ago) haven’t provided any objective, peer-reviewed evidence for its efficacy, and Wikipedia cites numerous authorities who refuse to endorse the therapy, and even claim evidence of harm. So which is it?

Peer-Reviewed Studies:  Gerson’s Side

I’m not able to evaluate the “peer-reviewed” studies the Institute cites.  Most, though, are around sixty years old, and many of them pre-date the diet’s use on cancer specifically (first uses were on migraines and tuberculosis), with the latest study in 1978.  In the current climate, so favorable now to raw and whole foods, the lack of any studies since 1978 is a red flag.

I also see in the Institute’s explanations a certain anxiety in the war of propaganda apparently being waged: “No treatment works for everyone, every time. Anyone who tells you otherwise is not giving you the facts. . . . In most cases your trusted family physician only has knowledge of conventional treatments, and is either unaware of, or even hostile toward alternative options.” They sound defensive, which does not give me confidence. On the other hand, some proponents of the Gerson diet say they are battling far better funded pharma companies and doctors who have an economic interest in remaining indispensable. But is that enough to explain even the Institute’s own apparent failures to cite evidence supporting their claims?

Peer-Reviewed Studies:  The Critics

The American Cancer Society (ACS) – which I do not assume is without economic and other bias, says:

There have been no well-controlled studies published in the available medical literature that show the Gerson therapy is effective in treating cancer.

In a recent review of the medical literature, researchers from the University of Texas MD Anderson Cancer Center identified 7 human studies of Gerson therapy that have been published or presented at medical conferences. None of them were randomized controlled studies. One study was a retrospective review conducted by the Gerson Research Organization. They reported that survival rates were higher than would normally be expected for patients with melanoma, colorectal cancer and ovarian cancer who were treated with surgery and Gerson therapy, but they did not provide statistics to support the results. Other studies have been small, had inconclusive results, or have been plagued by other problems (such as a large percentage of patients not completing the study), making it impossible to draw firm conclusions about the effectiveness of treatment.

Quack Watch reviews the Institute’s claims in more seemingly devastating detail, saying the Institute’s claims are typical of several “Typical Misrepresentations”:

Proponents of questionable methods typically claim that marketplace demand and testimonials from satisfied customers are proof that their remedies work. However, proponents almost never keep score or reveal what percentage of their cases end in failure. Cancer cures attributed to questionable methods usually fall into one or more of five categories:

  • The patient never had cancer.
  • A cancer was cured or put into remission by proven therapy, but questionable therapy was also used and erroneously credited for the beneficial result
  • The cancer is progressing but is erroneously represented as slowed or cured.
  • The patient has died as a result of the cancer (or is lost to follow-up) but is represented as cured.
  • The patient had a spontaneous remission (very rare) or slow-growing cancer that is publicized as a cure.

I know enough about statistics and the scientific method to find these critiques worth a pause.  If the critics are correct, the failure to produce any evidence of effectiveness over six or more decades is a serious one. An even-handed review by the seemingly more sympathetic (and Europe-based) Complementary and Alternative Medicine for Cancer (CAM-Cancer) also could not find support for the Institute’s claims, summarizing the matter thus:

Overall, the treatment has not been found to be effective as a cure for cancer. However, attempts to evaluate the Gerson therapy as a whole are problematic due to the complexity of the treatment, time taken for its possible effectiveness and poor record keeping/tracking of previous patients by the Gerson Institute.

So What?

Does it matter if the method isn’t effective at curing cancer?  Only if (1) it precludes using or slows the efficacy of other methods or (2) it’s actively harmful.

My understanding is that Mom doesn’t intend to use the Gerson diet in lieu of any effective therapy.  Chemotherapy, for instance, is not effective on lung cancer like hers. So it may not matter at all that the Gerson Institute does not recommend the use of chemotherapy with its diet (on grounds “the chemotherapy is seen as a poison in the body, and during detoxification the body would find difficulty in dealing with the level of toxins” – see CAM-Cancer).

Can the Gerson diet be harmful?  Apparently it can, according to the critics and CAM-Cancer:

Gerson therapy can lead to several significant health problems. Serious illness and death have occurred as a direct result of some portions of the treatment, including severe electrolyte imbalances. Continued use of enemas may weaken the colon’s normal function, causing or worsening constipation and colitis. Other complications have included dehydration, serious infections and severe bleeding.

The therapy may be especially hazardous to pregnant or breast-feeding women.

Coffee enemas have contributed to the deaths of at least three people in the United States. Coffee enemas “can cause colitis (inflammation of the bowel), fluid and electrolyte imbalances, and in some cases septicaemia.” The recommended diet may not be nutritionally adequate. The diet has been blamed for the deaths of patients who substituted it for standard medical care.

Relying on the therapy alone while avoiding or delaying conventional medical care for cancer has serious health consequences.

(Citations omitted; see Wikipedia).

How can we prevent these negative effects, Mom, while still getting the undeniable benefits of whole, raw food?

The Verdict: Cancer. Again.

A few days ago, Mom must have been having thoughts of mortality again, because she arranged for me to have power of attorney over some funds she has in an account in Germany “in case anything happens to me”.  She also mailed me her “UBC [USB] stick”, which has her notes on her life story, illness, and, not least, recipes.

Today she Facebooked this:

Dr. just called with Pathology report. Yes. It was cancer but he’ll send it off to Mayo clinic as he disagrees with pathologist [who erred in one of his key premises, that Mom’s lung cancer was her “primary” cancer, when her primary is the one from ten years ago:  ovarian]. It was “clean” without any others in there.

And she sent me a message from there too:

Just got report and it’s what I knew. Will now start the ‘Gerson method’ for sure. Need a different juicer. Mine’s crushing and not expelling the juice.– Will you start checking on flight cost? Where are we starting? French side? It’s the prettiest. :-)

In other words, she’s as determined as ever.  So here’s where things stand:

1.  We expect a report on the actual kind of cancer, and type of cells, from the Mayo Clinic within several days’ time.

2.  She’s throwing herself into the Gerson Method.  We’re looking into juicers that actually facilitate the whole point of juicing – at costs of around $1000 on eBay, but stay tuned to see who – we humble deserving sorts or the faceless eBay masses — wins the next auction (I’ll even take bets on who wins the betting).  Pricey, but we think it’s worth it.  Penny-wise, pound-foolish – and Mom’s pounds, so to speak, make up some very precious cargo!

3.  Mom is now clear that she wants to spend six weeks in Europe, walking as much of the Camino as she’s able, and then – and this thrilled me to hear it, Alp-lover that I am – reward herself with a few days in some Alpine spa, a la the old-fashioned “rest cures” popularized in Nobelist Thomas Mann’s The Magic Mountain.*

4.  I’m researching online and asking Don Julio, our Man on the Ground, what city to fly into, where to begin, what to bring, what it should weigh (a critical consideration), and so on.  As I do that, I’ll build our Resources page . . .

 

* Except that, if I recall correctly, Mann’s hero, Hans Castorp, a symbol of [pre-WWI Germany? European bourgeois society?] was sort of in love with being sick and dying. Though he visited the Swiss sanatorium of the title (based on the famous Waldsanatorium in Davos, Switzerland) only to see his tubercular cousin, his health got mysteriously worse and worse, so that he spent seven years there before being called up for World War I and, presumably, his end.  Mom is the anti-Hans.

Julio Revealed!

Our Man-on-the-Ground in Spain, Julio, sent me today some pictures of himself on one of his walking expeditions in China, with this note about China and his apparently still frustrated efforts to get underway on his next walking expedition:

Sorry, not feet enough to go around  China by foot …

Busy in Europe, still a lot of work to go through here …

He’s funny in Spanish, but when he tries to capture Spanish idioms in English, he’s just a riot:  there aren’t enough feet in the world to go around China by foot, he says, apologetically.

Ciutat-Pro_IMG_0578

Julio is the one who is not Chinese

Ciutat-ProIMG_0582

Julio, far right facing camera, is the one who looks most Chinese

The Other Great Pilgrimage, Locus of Many Darwin Awards: The Running of the Bulls in Pamplona

Mom notes on Facebook today that Pamplona “is on our way of the Camino. Glad this will Pamplona Bacchanalbe over.”

She’s referring here to the Running of the Bulls in Pamplona. Hemingway was much in love with bullfighting and Pamplona itself, but today’s Running of the Bulls is the sort of bacchanal usually associated with drunken college students on southern American beaches. The Running of the Bulls is also a frequent subject of the Darwin Awards, won each year by people who, through breathtaking acts of stupidity, remove themselves from the gene pool.

PamplonaFrom ABC News today:

For those keeping track, the count stands at 113.

Injuries, that is, as the annual “Running of the Bulls” continued in Pamplona, Spain this weekend. Sixteen people have been hospitalized with serious injuries in four days.

The cobblestone streets of this northern Spanish town were slippery with dew, alcohol and trash from parties that rage during the eight-day San Fermín Festival.

Overcrowding has been a major problem, increasing the danger to the runners on the 900-yard course. About 1.6 million people are expected to visit during the festival.

If you were attending the Running of the Bulls, your to-do list might look like this:

1. Fly to Spain

2. Get blindingly drunk

2a.  Show breasts (if female)

2b. Crowd-surf (usually males)

3. Run into street with bulls

4. Get impaled, gored, OR (extra credit) trampled

So, just to review.

This:

Drinking

inevitably leads to this:

Goring

Mom, Irascible, Continues Recovery, Insists on Hiking

Like in the Rocky movies, right after he hits either a physical or emotional downturn in mid-movie, Mom is back in training only days after leaving the hospital.  Cue the Training Montage, staple (in fact) of all fight movies, from martial arts and boxing films to wrestling, cheerleading, and dancing movies.  (My favorite scenes are of Stallone and Carl Weathers sprinting, on the beach).

Mom hasn’t quite figured out how to blog here, so I’m reposting her Facebook posts (at which she has become expert).

Yesterday:

Remember the old joke that the brain was not the most important organ?? It’s been 5 days without BM and I don’t think that’s a correct statement –I KNOW SO!Stopped the drugs all together. I think, one incision opened. I feel like I’ve been ‘filet’. Little buddy came with beautiful flowers as did other friends. Those bird brains have not called about pathology. Letting me wait the whole freakin’ weekend.

One of Mom’s friends told her that if she had an open incision, she should get to the hospital!

Mom:

I’m not paying Emergency room fees on top of those inflated ICU rooms. (You’re a good nurse. You come and see. :-)– I’m going hiking tomorrow. Maybe not Black Canyon but nevertheless…

Three or four days after surgery, Mom is ready to train again.  Can you believe it?

Today  6:02a.m. Mountain Time:

Hard rain most of the night. Great smells and sounds except for the huge Thunder. Came out of my bed (injury and all) like a shot and hollered ‘Holy Crap!!’ Dog ran under my bed and whined. If I could’ve, I would’ve followed. Going for a long walk at the park. Bored to tears at home.

It’s been gushing rain for days, in the form of thunderstorms. Mostly at night. Sleeping with the window open, there’s no better smell nor sound.

On the Coincidence of Spaniards Met in Brussels en Route to Israel

Back in May, my good friend (and partner at Charles River Recruiting) Adam Weiss and I traveled to Israel.  A problem with fuel in Tel Aviv, by various machinations no one could adequately explain, left us stranded in Brussels.  “Neat,” Adam said.  “And second prize is two days in Brussels.”  But Brussels has its charms, especially the Grand Place (French for “the Grand Place”), not to mention that while we were there we met an irrepressible Spaniard named Julio, who was also stranded en route to Israel, and who accompanied us on our second day of drinking in the sunny, French-accented Grand Place.

That night, we were back on our flight, and just after midnight we all said goodbye in the Tel Aviv Airport.  Julie stayed on in Tel Aviv, and Adam and I took a taxi to Jerusalem.  We toured the great old city for a few days, took a train to Haifa, then a bus to the mystical hilltop village of Tzfat.  And it was there, about five days after we’d arrived in Israel, that we ran into . . . Julio.

Now, at this time, I had no knowledge of the Camino de Santiago.  “Santiago,” I have learned, means St. (Santo) James (Diego, which is how the ancient Hebrew Ya’akov ended up being rendered in Spanish).  My acquaintance with the term “camino” was limited to the following:  (1) my mother’s 1972 2-door El Camino (2) my 1992 study of Spanish for an aborted trip to Patagonia – “camino” means “way” or “path” and is frequently used as English speakers use “road” or “street”, and (3) the Gipsy Kings’ dreamy, meditative “Caminando por la Calle”, or Walking in (or down) the street, which, interestingly, turns the camino or “path” into the gerund for “walking” itself – caminando (and, probably so as to avoid the repetition of “caminando por el camino”, substitutes calle for street).  It deserves your listening to’t:

So anyway, who does Julio turn out to be?

* a Spaniard

* who lives near the Camino de Santiago, in Bilbao, home of the world-famous Guggenheim Museum,

* and is the most experienced walker I have ever met.  In fact, he was in Israel precisely to walk from north to south, a distance of several hundred miles. He does these long walks several times a year.

And now he is not only offering advice on the Camino, he is walking parts of it himself, right now.  What are the odds?

Here is his latest:

Hi Cameron,

I´m still in bilbao, we suppose to move to Pyrenees already but problems last minute … always women problems … we´ll probably start next week.

Suggestions : In my opinion the most beautiful part is the begining , means one side of the mountain Saint Jean Pied de Port (France Basque country ) o Roncesvalles ( other side of the mountain , spanish basque side ) from here you walk to Pamplona , now huge fiesta going on – San Fermín – Bull fighters on the road , and many people injured because they are extremely ” brave pepople “.

From Pamplona to Logroño still nice, we are talking about Rioja´s heart.

After Logroño, temperatures in summer are a little bit like Death Valley, you must start every day really early otherwise , you risk of ” melt ” , dry part of Spain… from Logroño you could get bus to Burgos, beautiful cathedral, place to sleep pilgrims fifty yards from cathedral, you could get bus again to Leon , less than two hours, again another beautiful cathedral; the way out from Leon is disgusting, pick up the bus again and depending of how you feel , you could get near Santiago or few kilometers away.

Information concerning buses can be provided all around places where pilgrims spend nights, some people get the bus to Sarria, only 100 kms away from Santiago and that way you could get your ” title ” … you deserve the diploma , and only waiting a funny queue at
the Pilgrims Office in Santiago, you will be very proud of it.

How to decide, It depends how exhausted you are after walking under the sun.

In my case after this delay, we suppose to star walking next week, i dont feel confortable if i depends on other people decisions…  thisis going to be an ” special case ”

Well, let me know what you decide and make sure if i am around we´ll share a couple of San Miguel´s ( one of the most popular spanish beers “)

In the meantime, keep fit.

Hasta pronto,
julio

Post-Surgery, Mom Reports Into Facebook

Here’s what she had to say today:

I feel like I’ve been stabbed and then hit by a ‘Mac truck! (2 Days in Intensive care unit and then home. Too ornery to keep.) So. When someone says it’s ‘minimally invasive’ make sure you interpret MINIMAL correctly. Holy crap that was a surprise. Going back to bed and my hazy world of drugs. But, not to fear… I’m back. Thanks for all your good wishes and prayers.

and

Can’t sit very long and am too ‘medicated’ to think about spelling. 🙂 Just checking in to say ‘Hi’ to all of you lovely friends and wonderful family. Everyone called. Brother from Switzerland. Cousin from Germany. Friend from Las Vegas my daughter Tanya and my other daughter. :-)))))))))))) Coughing presents multi-culti curses.

Well-wishers are piling on with comments and Likes.

860-year-old Guestbook of Way of St. James Disappears

I’ve lived four-and-a-half decades without having come across the tiniest bit of news about the Camino de Santiago or its ultimate destination, the soaring cathedral of Santiago de Compostela.  In fact, when Mom told me about the pilgrimage, I said, in the manner conveyed to us in the sitcoms, “Say what?”

And yet, two days after I created a blog for my journey there with my mother, my PDA presented me with a BBC article reporting that the 12th century Codex Calixtinus, a priceless guidebook for pilgrims, disappeared yesterday afternoon from its seemingly secure storage at the cathedral.

This is either total coincidence or it’s looking increasingly as if Mom and I are being called to go all Da Vinci Code on the folks over there.