Answers…

I need to order my thoughts before I try to put the kaleidoskope of thoughts down, following the phone call from Doc.

The explanation of the test would be long and in medical language. The slide that was done (and they’d stake their reputation on it) is, that it is cancer and as there is still that last tumor, near my spine, we need to proceed with a therapy and or treatment. Of course, the first thought was denial in some form. Maybe 50%. I don’t want it to be there, or, with all that I’m doing the tumor has regressed.

I forgot to ask about a ‘name’ and I forgot to ask if there’s a ‘stage’. (Maybe I don’t want to know until way down the road.)

The word ‘radiation’ surgery/chemo, nearly took my breath and I’ve begged off for a time, yet. I told my Doctor, I really want to do the camino first. He agrees that this would be a grand thing to do. I am doing so well that it is very difficult to perceive there’s anything traitorous going on in my body. This is the push that I needed to go ahead with Gerson’s therapy. Now, that the juicer is working and I have little else occupying my mind other than taking care of myself. Having my coffee in a different way.

There are still more tests on August 2nd and waiting for those answers. If camino and my faith in a higher power do not work, the next step would be plan ‘B’ and Cyberknife’. But before that, I want to have a scan to make very sure that there is actually something there. My thoughts right now are really like wild birds flying in every direction.

This, I know for sure. I am going on the Camino de Santiago and nothing will deterr me.

Calling to find out…

Against my earlier self-advice I did call Doc’s office yesterday and left a message with my question about test result. Of course, then I waited and jumped every time the phone rang. My reason was/is, that when I do know I need to have time to research my options and can’t wait until the last minute.

Finally, in the late afternoon I get a call from the nurse only to tell me that Dr. is out of the office as well as today and if he has not called by Thursday, to call back. Geez!! It’s been over two weeks. This whole thing is like a crap shoot.

I had a hard time, yesterday not eating ‘Kielbasa’. When I was at the grocery store, suddenly I absolutely craved a piece and imagined biting in to it with the fat running down my chin. Luckily, this only lasted a second or two and I was once again, sane. (Could be I’m missing some protein??) I don’t have to plan what to eat (or  avoid) as I’m invited to a Veggie lunch. Just had a tall glass of wonderful carrot/apple juice, all the while imagining my cells jumping in this bright red, healthful ‘bath’, splashing and having a grand time. Sure makes one feel better right away. … and then, they rest on a tiny lounge chair wearing tiny sun glasses. haha (I swear there are no drugs involved.)

Waiting….

Phone calls are becoming more frequent with family and friends wanting to know the test results from the VATS. (Video Assisted Thoracic Surgery). The first result was incorrect and my Doctor ordered a new test from the Mayo Clinic. We know it is cancer. We just don’t know what ‘type’. What to call it. Give it a name. Well, I don’t want to name it. That would mean it’s going to hang around like a pet.

Meanwhile I also received my new ‘Champion Juicer’. Have to figure out how to work it. Bought 25 lbs of carrots. (Nearly the weight of my back pack!) That’s a lot of juice and I’m supposed to drink 8 oz every hour. (I wonder how quickly I’ll get tired of the taste? )Means, I can’t leave home. By the time I start and clean it up, here I go again. I think, I need to move someone in to help me with all this stuff. Then, the assortment of Vitamins and preparation of fresh, organic food. Of course, keeping a good attitude all the while, as well.

I’m having Lentils and potatoes with Bok-Choy today. A salad to start.

Synthetic nightmare is over

Upon waking this morning and hearing the birds, right outside my window, I felt peaceful. Breathing in the cleansed, moist mountain air from the great rains, once more I buoyed (is that even a word?). There are no discernible aftershocks from the emotional lava. I did come to the conclusion, that even though I have genuine feelings about this whole cancer trip, yesterday was mostly due to the side effects of the painkiller. I would rather feel the pain than go through another crappy day like yesterday, if I can avoid it. (Makes me wonder how many people take meds that alter their emotions and thinking? Then take more to deal with that.)

I will learn a little more after my Doc’s appointment today. Meanwhile, I will order some items for our hike. I also noticed, how I missed going up to the early morning sun-lit black walls of the canyon. Maybe this weekend.

Train wreck

Well. I didn’t see that one coming. I am totally wiped out and could wipe the puddle on the floor, that is me.

After months, weeks and days of utter cheerfulness and Pollyanna method, the mighty self crumbled and I’m weeping over any damn little thing. Could be the pain meds. Could be that I feel that having cancer once was enough. That I paid my ‘dues’. I feel like I carried this big sack up the mountain, slid back down, picked it back up and go again.. and again. I feel overwhelmed and sad. I wish I could find a Naturopathic Doc who would lead me through this jungle of choices. Which one to do? Which one to avoid?

I don’t want to repeat, even one more time, what my test result was and how this brings the reality closer and closer. Then again, tomorrow is another day and I’ll carry on, chin up, etc.— Thanks Cameron for catching me and giving me a soft place to fall.

The Gerson Therapy: Cancer Cure, or Health Risk?

It sounds reasonable enough.  According to the Gerson Institute the Gerson diet:

is naturally high in vitamins, minerals, enzymes, micro-nutrients, extremely low in sodium and fats, and rich in fluids.

The following is a typical daily diet for a Gerson patient on the full therapy regimen:

  • Thirteen glasses of fresh, raw carrot/apple and green-leaf juices prepared hourly from fresh, organic fruits and vegetables.
  • Three full vegetarian meals, freshly prepared from organically grown fruits, vegetables and whole grains. A typical meal will include salad, cooked vegetables, baked potatoes, vegetable soup and juice.
  • Fresh fruit and fresh fruit dessert available at all hours for snacking, in addition to the regular diet.

Then things get confusing.  Reading about the Gerson Therapy is like my first weeks as a judicial clerk for a federal judge, where I could still be swayed by whichever argument I was reading.  Witness the Gerson Institute’s common-sensical explanation:

Throughout our lives our bodies are being filled with a variety of disease and cancer causing pollutants. These toxins reach us through the air we breathe, the food we eat, the medicines we take and the water we drink. As more of these poisons are used every day and cancer rates continue to climb, being able to turn to a proven, natural, detoxifying treatment like the Gerson Therapy is not only reassuring, but necessary.

The Gerson Therapy is a powerful, natural treatment that boosts your body’s own immune system to heal cancer, arthritis, heart disease, allergies, and many other degenerative diseases. One aspect of the Gerson Therapy that sets it apart from most other treatment methods is its all-encompassing nature. . . . [T]hirteen fresh, organic juices are consumed every day, providing your body with a superdose of enzymes, minerals and nutrients . . . break down diseased tissue in the body, while enemas aid in eliminating the lifelong buildup of toxins from the liver.

With its whole-body approach to healing, the Gerson Therapy naturally reactivates your body’s magnificent ability to heal itself – with no damaging side-effects. Over 200 articles in respected medical literature, and thousands of people cured of their “incurable” diseases document the Gerson Therapy’s effectiveness. The Gerson Therapy is one of the few treatments to have a 60 year history of success.

The Institute goes on to add that “it is rare to find cancer, arthritis, or other degenerative diseases in cultures considered ‘primitive’ by Western civilization. Is it because of diet? The fact that degenerative diseases appear in these cultures only when modern packaged foods and additives are introduced would certainly support that idea.” Gerson’s solution:  “Stay close to nature and its eternal laws will protect you.”

The Gerson Therapy seeks to regenerate the body to health, supporting each important metabolic requirement by flooding the body with nutrients from almost 20 pounds of organically grown fruits and vegetables daily. Most is used to make fresh raw juice, one glass every hour, 13 times per day. Raw and cooked solid foods are generously consumed. Oxygenation is usually more than doubled, as oxygen deficiency in the blood contributes to many degenerative diseases. The metabolism is also stimulated through the addition of thyroid, potassium and other supplements, and by avoiding heavy animal fats, excess protein, sodium and other toxins.

Degenerative diseases render the body increasingly unable to excrete waste materials adequately, commonly resulting in liver and kidney failure. To prevent this, the Gerson Therapy uses intensive detoxification to eliminate wastes, regenerate the liver, reactivate the immune system and restore the body’s essential defenses – enzyme, mineral and hormone systems. With generous, high-quality nutrition, increased oxygen availability, detoxification, and improved metabolism, the cells – and the body – can regenerate, become healthy and prevent future illness.

According to critics, however, the evidence for the efficacy of the Gerson Therapy is lacking.  While the Institute cites “peer-reviewed” studies, critics claims Gerson’s people (Gerson being deceased half a century ago) haven’t provided any objective, peer-reviewed evidence for its efficacy, and Wikipedia cites numerous authorities who refuse to endorse the therapy, and even claim evidence of harm. So which is it?

Peer-Reviewed Studies:  Gerson’s Side

I’m not able to evaluate the “peer-reviewed” studies the Institute cites.  Most, though, are around sixty years old, and many of them pre-date the diet’s use on cancer specifically (first uses were on migraines and tuberculosis), with the latest study in 1978.  In the current climate, so favorable now to raw and whole foods, the lack of any studies since 1978 is a red flag.

I also see in the Institute’s explanations a certain anxiety in the war of propaganda apparently being waged: “No treatment works for everyone, every time. Anyone who tells you otherwise is not giving you the facts. . . . In most cases your trusted family physician only has knowledge of conventional treatments, and is either unaware of, or even hostile toward alternative options.” They sound defensive, which does not give me confidence. On the other hand, some proponents of the Gerson diet say they are battling far better funded pharma companies and doctors who have an economic interest in remaining indispensable. But is that enough to explain even the Institute’s own apparent failures to cite evidence supporting their claims?

Peer-Reviewed Studies:  The Critics

The American Cancer Society (ACS) – which I do not assume is without economic and other bias, says:

There have been no well-controlled studies published in the available medical literature that show the Gerson therapy is effective in treating cancer.

In a recent review of the medical literature, researchers from the University of Texas MD Anderson Cancer Center identified 7 human studies of Gerson therapy that have been published or presented at medical conferences. None of them were randomized controlled studies. One study was a retrospective review conducted by the Gerson Research Organization. They reported that survival rates were higher than would normally be expected for patients with melanoma, colorectal cancer and ovarian cancer who were treated with surgery and Gerson therapy, but they did not provide statistics to support the results. Other studies have been small, had inconclusive results, or have been plagued by other problems (such as a large percentage of patients not completing the study), making it impossible to draw firm conclusions about the effectiveness of treatment.

Quack Watch reviews the Institute’s claims in more seemingly devastating detail, saying the Institute’s claims are typical of several “Typical Misrepresentations”:

Proponents of questionable methods typically claim that marketplace demand and testimonials from satisfied customers are proof that their remedies work. However, proponents almost never keep score or reveal what percentage of their cases end in failure. Cancer cures attributed to questionable methods usually fall into one or more of five categories:

  • The patient never had cancer.
  • A cancer was cured or put into remission by proven therapy, but questionable therapy was also used and erroneously credited for the beneficial result
  • The cancer is progressing but is erroneously represented as slowed or cured.
  • The patient has died as a result of the cancer (or is lost to follow-up) but is represented as cured.
  • The patient had a spontaneous remission (very rare) or slow-growing cancer that is publicized as a cure.

I know enough about statistics and the scientific method to find these critiques worth a pause.  If the critics are correct, the failure to produce any evidence of effectiveness over six or more decades is a serious one. An even-handed review by the seemingly more sympathetic (and Europe-based) Complementary and Alternative Medicine for Cancer (CAM-Cancer) also could not find support for the Institute’s claims, summarizing the matter thus:

Overall, the treatment has not been found to be effective as a cure for cancer. However, attempts to evaluate the Gerson therapy as a whole are problematic due to the complexity of the treatment, time taken for its possible effectiveness and poor record keeping/tracking of previous patients by the Gerson Institute.

So What?

Does it matter if the method isn’t effective at curing cancer?  Only if (1) it precludes using or slows the efficacy of other methods or (2) it’s actively harmful.

My understanding is that Mom doesn’t intend to use the Gerson diet in lieu of any effective therapy.  Chemotherapy, for instance, is not effective on lung cancer like hers. So it may not matter at all that the Gerson Institute does not recommend the use of chemotherapy with its diet (on grounds “the chemotherapy is seen as a poison in the body, and during detoxification the body would find difficulty in dealing with the level of toxins” – see CAM-Cancer).

Can the Gerson diet be harmful?  Apparently it can, according to the critics and CAM-Cancer:

Gerson therapy can lead to several significant health problems. Serious illness and death have occurred as a direct result of some portions of the treatment, including severe electrolyte imbalances. Continued use of enemas may weaken the colon’s normal function, causing or worsening constipation and colitis. Other complications have included dehydration, serious infections and severe bleeding.

The therapy may be especially hazardous to pregnant or breast-feeding women.

Coffee enemas have contributed to the deaths of at least three people in the United States. Coffee enemas “can cause colitis (inflammation of the bowel), fluid and electrolyte imbalances, and in some cases septicaemia.” The recommended diet may not be nutritionally adequate. The diet has been blamed for the deaths of patients who substituted it for standard medical care.

Relying on the therapy alone while avoiding or delaying conventional medical care for cancer has serious health consequences.

(Citations omitted; see Wikipedia).

How can we prevent these negative effects, Mom, while still getting the undeniable benefits of whole, raw food?

The Verdict: Cancer. Again.

A few days ago, Mom must have been having thoughts of mortality again, because she arranged for me to have power of attorney over some funds she has in an account in Germany “in case anything happens to me”.  She also mailed me her “UBC [USB] stick”, which has her notes on her life story, illness, and, not least, recipes.

Today she Facebooked this:

Dr. just called with Pathology report. Yes. It was cancer but he’ll send it off to Mayo clinic as he disagrees with pathologist [who erred in one of his key premises, that Mom’s lung cancer was her “primary” cancer, when her primary is the one from ten years ago:  ovarian]. It was “clean” without any others in there.

And she sent me a message from there too:

Just got report and it’s what I knew. Will now start the ‘Gerson method’ for sure. Need a different juicer. Mine’s crushing and not expelling the juice.– Will you start checking on flight cost? Where are we starting? French side? It’s the prettiest. :-)

In other words, she’s as determined as ever.  So here’s where things stand:

1.  We expect a report on the actual kind of cancer, and type of cells, from the Mayo Clinic within several days’ time.

2.  She’s throwing herself into the Gerson Method.  We’re looking into juicers that actually facilitate the whole point of juicing – at costs of around $1000 on eBay, but stay tuned to see who – we humble deserving sorts or the faceless eBay masses — wins the next auction (I’ll even take bets on who wins the betting).  Pricey, but we think it’s worth it.  Penny-wise, pound-foolish – and Mom’s pounds, so to speak, make up some very precious cargo!

3.  Mom is now clear that she wants to spend six weeks in Europe, walking as much of the Camino as she’s able, and then – and this thrilled me to hear it, Alp-lover that I am – reward herself with a few days in some Alpine spa, a la the old-fashioned “rest cures” popularized in Nobelist Thomas Mann’s The Magic Mountain.*

4.  I’m researching online and asking Don Julio, our Man on the Ground, what city to fly into, where to begin, what to bring, what it should weigh (a critical consideration), and so on.  As I do that, I’ll build our Resources page . . .

 

* Except that, if I recall correctly, Mann’s hero, Hans Castorp, a symbol of [pre-WWI Germany? European bourgeois society?] was sort of in love with being sick and dying. Though he visited the Swiss sanatorium of the title (based on the famous Waldsanatorium in Davos, Switzerland) only to see his tubercular cousin, his health got mysteriously worse and worse, so that he spent seven years there before being called up for World War I and, presumably, his end.  Mom is the anti-Hans.

Mom, Irascible, Continues Recovery, Insists on Hiking

Like in the Rocky movies, right after he hits either a physical or emotional downturn in mid-movie, Mom is back in training only days after leaving the hospital.  Cue the Training Montage, staple (in fact) of all fight movies, from martial arts and boxing films to wrestling, cheerleading, and dancing movies.  (My favorite scenes are of Stallone and Carl Weathers sprinting, on the beach).

Mom hasn’t quite figured out how to blog here, so I’m reposting her Facebook posts (at which she has become expert).

Yesterday:

Remember the old joke that the brain was not the most important organ?? It’s been 5 days without BM and I don’t think that’s a correct statement –I KNOW SO!Stopped the drugs all together. I think, one incision opened. I feel like I’ve been ‘filet’. Little buddy came with beautiful flowers as did other friends. Those bird brains have not called about pathology. Letting me wait the whole freakin’ weekend.

One of Mom’s friends told her that if she had an open incision, she should get to the hospital!

Mom:

I’m not paying Emergency room fees on top of those inflated ICU rooms. (You’re a good nurse. You come and see. :-)– I’m going hiking tomorrow. Maybe not Black Canyon but nevertheless…

Three or four days after surgery, Mom is ready to train again.  Can you believe it?

Today  6:02a.m. Mountain Time:

Hard rain most of the night. Great smells and sounds except for the huge Thunder. Came out of my bed (injury and all) like a shot and hollered ‘Holy Crap!!’ Dog ran under my bed and whined. If I could’ve, I would’ve followed. Going for a long walk at the park. Bored to tears at home.

It’s been gushing rain for days, in the form of thunderstorms. Mostly at night. Sleeping with the window open, there’s no better smell nor sound.

Post-Surgery, Mom Reports Into Facebook

Here’s what she had to say today:

I feel like I’ve been stabbed and then hit by a ‘Mac truck! (2 Days in Intensive care unit and then home. Too ornery to keep.) So. When someone says it’s ‘minimally invasive’ make sure you interpret MINIMAL correctly. Holy crap that was a surprise. Going back to bed and my hazy world of drugs. But, not to fear… I’m back. Thanks for all your good wishes and prayers.

and

Can’t sit very long and am too ‘medicated’ to think about spelling. 🙂 Just checking in to say ‘Hi’ to all of you lovely friends and wonderful family. Everyone called. Brother from Switzerland. Cousin from Germany. Friend from Las Vegas my daughter Tanya and my other daughter. :-)))))))))))) Coughing presents multi-culti curses.

Well-wishers are piling on with comments and Likes.

“It wasn’t a minimally-invasive procedure after all”

Mom called me today, having just gotten out of the hospital.  My first reaction to her voice was concern:  she sounded . . . sad.  Or emotional.  Turned out she was, in fact, in “a lot of pain.”  One of the first things she said was that the procedure “wasn’t minimally invasive, I can tell you that.”

“I don’t know why I thought it was going to be a simpler procedure,” she said, in that slightly higher, sleepier tone.  “But I guess I’m glad I didn’t know what it was going to be.”

“You probably would have just worried more, to no effect,” I agreed.

“I just wanted you to know I’m going to be out of commission for a while.  Julie” – a close friend of Mom’s who is around my age – “is here and she’s helping me.  I have to go now, though.  I need to lie down and just rest.  The pain is really terrible.”

“Okay,” I said.  “I’ll talk to you later.  I love you.  And have someone read you my blog article!”

She said she would.  And off she went, probably to sleep.